Sunday, March 2, 2014

Depression: A Mind and Mood Matter Part III

Depression:  A Mind and Mood Matter
Part III
March 2, 2014
Make Your Doctor Listen

Do you ever feel like your doctor doesn’t listen?  We all know that physicians are extremely busy.  Each of us have most likely had an experience sitting in a crowded waiting room while a limited staff does all they can to herd patients in and out like cattle.  The doctor rushes in when you are lucky enough to make it to the exam room.  He/She quickly flips through your file and you are thinking, “they must be speed readers.  How can they remember everything about me?”  Maybe you are like me and you have seen the same medical doctor for 29 years?  However, my trips to Psychiatrists could be likened to a roller coaster ride.  I want to share some of those experiences and stress the importance in this blog of insisting that your doctor listen to every word you speak. 

A patient can’t go into a doctor’s office and say “I have a mass in my abdomen and I think I am dying of cancer,” and expect the doctor not to run a battery of tests and attempt to rule cancer out.  Right?  We also can’t self-diagnose.  Many illnesses share the same symptoms.  This is so true for mental illness.  As I have said before, Depression and Bipolar Disorder have such common or notable symptoms that it would be easy for a medical professional to misdiagnose if they don’t have all the information.  According to Wikipedia, there are 189 different types of mental disorders…of course they share many of the same symptoms.

Before taking control of my illness I bounced around to several Psychiatrists in Calhoun, Etowah and Jefferson Counties.  I will not name any names on this blog, because I do not want to disparage anyone, but let me share a very scary experience with a Psychiatrist in Anniston.  I was having a particularly difficult time and had been making very impulsive decisions.  One of those was to try a brand new doctor without stopping the medication I was already on.  It was a poor decision on my part and one that I fortunately was able to “live” to regret, but it was a close call.  Five minutes in the man’s chair and he pulled out a prescription pad.  As far as I know he had not reviewed the current medication list on my new patient paperwork.  He prescribed Geodon, an anti-psychotic drug for those who suffer from Bipolar Disorder.  Once again, he didn’t pay attention to the medications I was currently taking.  It was haphazard of him.  I made the mistake of not insisting that I stop other meds, or clarify that it would be okay to mix them, but every time I tried to speak, he just cut me off or I felt he was not really listening.

The combination of Geodon, 1600mg of Lithium per day, Prozac, and Xanax was almost lethal to my body.  I literally had to crawl to bed within 20 minutes after taking the drug.  Certainly it takes a little time to adjust, and I will address that a little later, but my side effects were unbearable.  I became very dizzy, nauseated, and paranoid.  Tremors and hallucinations lasted throughout the night.  I went to work the next day and felt like a zombie.  I repeated the process that night and had the same outcome.  I called my medical doctor and never went back to see the Anniston quack again.  Again, my side effects where not mild…they were extremely intense.  My family doctor started treating me at age 13 and he was furious with me for randomly picking a new Psychiatrist and not being strong enough to recognize the danger in that situation.

Dr. Ingram explained to me that a proper mental illness diagnosis comes after many conversations, documentation of behavior, symptoms, etc.  He did teach me that trial and error is necessary with any anti-depressants and I accept this.  Most of us have experienced the need to allow new medications to work into our system.  It truly takes about 2-3 weeks for your body and chemical make-up to adjust when adding a new script.  Those 2-3 weeks are crucial.

Patients will face many different side effects because we are all made differently.  You and I will never experience 100% of the same outcome from our meds.  We have to be resolved to give ample time within reason.  Clearly, the anti-psychotic medication was not right for me in combination with that much Lithium and other drugs.  I have however had to learn to put up with a few uncomfortable symptoms over the years when starting new meds.  Prozac used to make me want to pick at my clothes, bite my fingernails, even get down on the floor and just tear at the carpet.  The best way I can describe the feeling is that I just couldn’t stand myself during that time.  I hated being in my own skin. 

The Mayo Clinic released a study in 2008 stating that patients can have increased thoughts of suicide during the first two weeks of starting new meds.  I was talking with my friend Tracy who is an R.N., and we came to this conclusion:
            A person is often so depressed they don’t have the mental capacity, willpower, energy, or even fight in them to harm themselves.  They can barely get out of bed at times. We can be emotionally paralyzed to the point that it’s almost a physical paralysis.  So when that person starts a new medication that is truly going to help improve their health, the middle ground between rock bottom and “quality of life” can give the energy and drive to execute a plan of suicide.  Feeling better isn’t always that much better when you are referencing being on rock bottom with depression.  A person who has contemplated suicide has to improve quite a lot to remove that idea from their daily thought process.  Therefore many professionals recommend and even insist that patients do not live alone while trying new meds.

My friend Lu Anne was encouraging me last week and telling me how proud she is that I have kept my career going and been able to function in society so much better than many people who suffer from Bipolar Disorder or other illnesses.  I feel lucky and I feel blessed.  God knows that my career and my friends keep me going.  I have been at that place many times where I wanted to just give up and I didn’t believe that I could get out of bed and go to work.  Fortunately, I have never had to give serious thought to disability.  I am not saying that I never will, and clearly have enough history documented that I could, but part of living for me is working.  It’s in my DNA.  My mother is 70 years old and has already retired from 35 years in a cotton mill and is now 11 years into her second career.  She recently suffered two heart attacks and lives with a total of eleven stents.  She continues to work.  And so will I. 
I want to empower you with my words.  I want you to know that if you are fighting a mental illness the way I have and still am, you can be in control and you should be.  Your support team needs to read this blog and understand that you have to be truthful at every visit to the doctor.  You need to document every symptom and hold nothing back.  Medicine is evolving in regards to mental illness just as it is with heart disease, high blood pressure, cancer, etc.  The more information you give your medical professional the more accurately they can treat you.  Hold him/her accountable.  Keep a notebook or journal and ask lots of questions.  An improper diagnosis can be extremely detrimental to the patient and the family.

Regarding treatment, the other obstacle that I have struggled with is that your body becomes immune to certain dosages of some medications after a time.  Your doctor may even alter the dosage every three months.  Once you find a great medical professional, stick with them.  Find the one you can trust who will take the time, maintain great records, and can be easily reminded of past experiences or episodes you may have suffered.  You deserve every chance to beat this monster.  We all do!

I am grateful to God for giving me the path to my recovery and for showing me the way to share my experiences in order to hopefully change the stigma or eliminate the shame and help others.  Please share this blog with those you love.


Love to you all…